(Source: heymegan-, via the-running-girl)
These women are amazing, and are exactly what I needed to see right now. So inspirational/motivational. Julia Mancuso is my new hero.
(Source: operation-restoration, via yosoyo)
(via happyhealthyheidi)
(via fysurf)
(Source: calisaysrelax, via fysurf)
(Source: definitionofdifferentx0x, via yosoyo)
(via yosoyo)
Well, that’s what a sick person looks like! lol. With skin in a nice shade of ‘ghost’.
Not doing too well, another barrage of tests and appointments. It’s suspected that I do, as questioned for years, have Lupus (or some other autoimmune disease) on top of the Ehlers-Danlos.
I’m honestly feeling one of the worst I’ve ever felt. This has come on so quickly out of left field. Thought it was just a thyroid flare but nope. Something is seriously up.
I’m almost at the state where I might have to go into the hospital. The bloods will come back ASAP with results on my salts and electrolytes and stuff so that’ll help decide.
I just want these last 4 years to be deleted from my life and be a normal healthy person again.
Incurable genetic diseases are not nice.
This is hell.
(via yosoyo)
Watching the Taylor Swift special
Is she not the cutest girl on the planet? I want to be her best friend. And I want her wardrobe.
“I used to cut the labels out of my clothes because I was so embarrassed at being a size 14. There used to be such a stigma about having a size 14 body. Most of the clothing stopped at a size 14 … and it was always a small 14. “
(via fuckyeahbodyimage)
What I look like right now
Feeling like death, struggling to stay out of the hopeless deep dark hole of apathy that I sometimes feel like crawling into.
I very rarely give in to these feelings and admit that I’m down, and actually allow myself to be down. Through all of this I refuse to be one of the ‘whiners’.
But now I’m admitting to feeling like I want to just give up.
Admitting to wondering if I’ll ever get a break from this hell; a break that lasts more than just a couple of “good”ish days.
Admitting to giving in to self pity for just once in my life.
Asking why why why has this happened to me….
Ehlers-Danlos, Chiari, Thyroid, Autoimmune, Unknown infections, and whatever new diagnoses are going to pop up on these new tests: I’m sick of fighting you. Sick of being sick…..
I don’t know what I’ll do if I keep deteriorating. I have to have a crapload more bloodwork done looking for further autoimmune issues (as previously thought), possibly lupus, or maybe still not enough thyroid treatment being taken, or some sort of full on infection. Also my pain meds (twice daily Hydromorph Contin - long acting morphine) have FINALLY been upped to 3 doses a day. That’s a telling sign that I’m getting worse.
